What to do After Being diagnosed with Celiac disease

Give Yourself Some TiMe

First, be aware that you will go through the grief process. This is a perfectly natural process. It’s the way we all deal with what may be bad news. We go through several stages, including shock, disbelief, anger, depression, and loneliness before we develop a sense of hope. Sometimes we feel better for a while, only to slip unexpectedly back into anger or depression. This is completely normal, and at one point or another, we have been through this. 

If you need to get professional grief counseling, DO IT! There are many options and resources that can be found online. If you don’t want to follow that route, do the next best thing – make friends with someone who is successfully living life gluten free. They will understand what you are going through and help you see that life exists after Twinkies! 

This process takes time and the more willing you are to learn, connect, and reach out for help the easier it will get. We are here for you, and happy to support you in any way we can.

This is an important step to take. Because a diagnosis of celiac or gluten-intolerance can come with a negatively phrased prescription (“You may NOT eat wheat, barley, rye, or contaminated oats.”), it is easy to fall into the habit of listing all the things we CAN’T eat. When you start listing all the things you CAN eat, your whole perspective changes.

Many people with celiac have been instinctively avoiding wheat-based food anyway, so your list of “Allowed Foods” is almost certain to include some of the things you eat regularly. For example, when Betsy, one of the founders was growing up, she ate tacos, Spanish rice, baked potatoes, chicken fried rice (with a soy sauce that just happens to be GF), bunless hamburgers with cottage fried potatoes, and chili with rice all the time (at least once or twice a month).

Julie, her mom, didn’t realize that she “just liked them” because these meals were gluten free, but she subconsciously gravitated toward these foods that didn’t make her sick. When you evaluate your eating habits . . . we bet that you will discover that you have done something similar.

Also, you might be surprised how much you still can eat, and it’s a matter of finding a substitute or replacement that is gluten free that doesn’t hurt your body.

Make A List

Of All the things you can eat 

Explore a Variety of Foods

Choose to Cook

We live in a time where fast food and eating out are almost considered a necessity. Being diagnosed as gluten-intolerant changes the dining out experience but that’s okay! Look at this as an opportunity to start feeding yourself (and your family) the healthier diet (full of fruits and vegetables) that you’ve always dreamed of!

You can also look at it as a chance to learn a new skill – cooking is an art form that has fallen out of fashion in many circles, but when your child looks at you and says, “Mom, this is delicious! You’re a great cook!” you’ll feel a sense of accomplishment that picking up fast food could never match.

Cooking can also be a way to discover and be creative with your meals. This gives you the opportunity to try new food and new recipes to expand your palate. Trying new recipes makes the process fun and adventurous rather than stressful or overwhelming.

It’s Always Better With Friends

Find a Friend to Bake With

When you are trying new recipes, it always helps to have a friend around and plenty of time for trial and error. There’s nothing worse than making your own GF birthday cake, only to have it explode (or collapse) on you 30 minutes before party time. Ask Betsy’s sister! 

At the same time, when you’re cooking with a buddy and your cupcakes come out of the oven looking like Mount St. Helens after it exploded, you’ve got someone to laugh with. You’ve also got someone to discuss possible solutions with. (WE decided to fill the middles with LOTS of frosting and stick to full-sized cakes with that recipe in the future.) 

Friends also make the journey seem easier and less lonely. Even if they don’t have to eat gluten free, and they love baking, this love of baking can make it fun and exciting to try something new. We believe that trying new things together is always more fun than trying them alone.

Choose a Recipe and Make It

If you’ve never cooked anything but microwave popcorn, we suggest you start with something very easy (such as migas or taco soup). If you have more experience, choose something you’ve been missing (such as our soft batch cookies or chocolate cake). 

Or you could choose to make our true yeast bread recipe, which can fill many different food needs (bread, toast, pizza crust, stuffing, sandwiches, hamburger buns, French toast, etc.). Successfully completing a delicious gluten-free recipe raises your spirits considerably . . . you realize that you can do this!

We have over 250 recipes that we have made and that we love to make and enjoy regularly. Betsy, one of the original founders, is always experimenting and trying new things too, you can follow her blog here for ideas. 

Once you have your favorite recipes, then you can rotate through and try a new recipe each week. Before you know it you will have a whole new collection of meals you love to make and enjoy because life tastes good again!

Buy some basic 

gluten free baking supplies

START WITH OBVIOUS NEEDS – FLOUR, XANTHAN GUM, & EATING GLUTEN FREE MIXES

Because other (non-wheat) flours have differing amounts of carbs, proteins, fibers, etc. than wheat, a mixture of different GF flours and starches works best to replace wheat flour in recipes. You could use plain white rice flour, but you wouldn’t be happy with the result!

Eating Gluten Free also has an All-Purpose Flour which makes it easy to use our blend to replace flour in any recipe. We created our blend because so many of our customers requested it. So you can make your own flour mix, if you want to and if you don’t then our blend makes it convenient to use on a regular basis.

We also have xanthan gum available in our shop making it easy to get everything you need in one place.

Ingredients You Might Want on hand

  • White Rice Flour *
  • Tapioca Starch / Flour
  • Potato Starch **
  • Potato Flour **
  • Corn Starch
  • Xanthan gum ***

 

We also encourage you to buy some plastic containers (with lids) to keep your GF flours in. Don’t forget to clearly label them, as many gluten-free flours look a lot alike!

* In the long run, it’s cheaper to buy a mill and grind your own rice flour from bulk-purchased white rice. Be sure it’s a mill that hasn’t been used for wheat.

** Potato Starch and Potato Flour are not the same thing, and cannot be used interchangeably. Tapioca starch and tapioca flour, on the other hand, ARE the same thing . . . so don’t get confused!

*** Xanthan gum is probably the most expensive ingredient you’ll need to buy, but you don’t use very much of it (only 1 teaspoon or so in most recipes). Don’t try to skip it because of the price tag . . . xanthan gum is what makes GF baked goods stick together!

Practice Makes Perfect

If at first you don’t succeed, try, try again!

Sometimes things don’t work out right, and other times you just don’t like the flavor of the final product. DON’T GIVE UP! Make some notes about what worked and what you didn’t like, and then try the recipe again later. 

As you get more experience cooking gluten-free foods, you’ll begin to discover the things you can do to make your recipes turn out the way you want them to. And soon you’ll be creating wonderful gluten-free recipes of your own!

The key here is that you keep trying. If you get super frustrated with what isn’t working give us a holler on our website here and we will see what we can do to help!

Get Support from Kate’s GF Kitchen

If you are looking for more one-on-one support from someone who has experience with baking and cooking gluten-free, we encourage you to reach out to Kate’s GF Kitchen. She is located in Provo, Utah, and she sells gluten-free baked goods, cinnamon rolls, and bread every week. 

Kate also has occasional online support classes you can join to learn more about cooking gluten free, and she has a variety of online courses you can take to improve your gluten-free cooking skills and for adjusting to life after being diagnosed with celiac.

Explore Our Recipes & Products

Explore Our Recipes

With over 250 recipes that we have tried, tested, and experimented with we are confident that you will be able to find something you will enjoy. 

Explore Our Flours & Mixes

Eating Gluten Free mixes, particularly our Pancake and Waffle Mix, have a reputation for being loved by those who don’t have to eat gluten free. We created our mixes to make it easy for you and your family to have food that tastes good, and that won’t make you or a loved one sick. 

Modifying REcipes That Are Not Usually Gluten Free

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Eating Gluten Free does not provide medical advice, diagnosis, or treatment.

The information found on this website is not intended to replace or substitute professional medical treatment or for professional medical advice relative to a specific medical condition.

We urge you to always seek the advice of your physician, or medical professional.